Jamie Arking: A FTD Caregiver Story

FTD Caregiver, Jamie Arking, shares the story of his father's experience with Frontotemporal degeneration (FTD).

Sandy Karger: A FTD Caregiver Story

FTD Caregiver, Sandy Karger, shares the story of her husband's experience with Frontotemporal degeneration (FTD).

Diane Fehon: A FTD Caregiver Story

FTD Caregiver, Diane Fehon, shares the story of her husband's experience with Frontotemporal degeneration (FTD).

Through the Eyes of the Caregiver: Frontotemporal Degeneration (FTD) and the Penn FTD Center

Frontotemporal degeneration (FTD) is a debilitating neurodegenerative disease that dramatically affects the lives of both the patient and their loved ones. Hear the stories of three dedicated FTD caregivers and their experience with the Penn Frontotemporal Degeneration Center.

2017 FTD Caregiver Conference Community Resources William Reiter, Alzheimer’s Association

William Reiter of the Alzheimer’s Association Delaware Valley Chapter wrapped up the conference with a presentation on community resources.

2017 FTD Caregiver Conference Advocacy Matthew Sharp, MSS AFTD

Matthew Sharp, MSS of the Association for Frontotemporal Degeneration (AFTD) discusses the importance of FTD Advocacy.

2017 FTD Caregiver Conference Legal and Long Term Planning Paul Feldman, Esquire

Paul L. Feldman, a founding partner of the law firm of Feldman and Feldman, stressed that it is never too early to talk about and plan for the future. 

2017 FTD Caregiver Conference Decision Making in Advanced Illness Lauren Massimo, PhD, CRNP

The Penn FTD Center's Lauren Massimo, PhD, CRNP discusses decision making in advanced illness, focussing on interventions to promote quality of life

2017 FTD Caregiver Conference Biomarker discovery Corey McMillan, PhD

Dr. Corey McMillan discusses the importance of biomarkers.

2017 FTD Caregiver Conference Clinical-pathological correlations David Irwin, MD

Dr. David Irwin of the Penn FTD Center discusses how improving the ability to distinguish between FTD subtypes is crucial to both clinical treatment and research

2017 FTD Caregiver Conference Keynote Presentation: What time is it when an elephant sits on a fence? Diane Fehon

Diane Fehon talks about her FTD caregiving journey

2017 FTD Caregiver Conference Video Premiere: Through the Eyes of the Caregiver: The Penn Frontotemporal Degeneration (FTD) Center

Murray Grossman, MD, EdD Intrdoces the premiere of Through the Eyes of the Caregiver: The Penn Frontotemporal Degeneration (FTD) Center 

2107 FTD Caregiver Conference What About the Kids and Teens? Alison Lynn, MSW, LSW

Alison Lynn, MSW, LSW of the Penn Memory Center discusses how the diagnosis of neurodegenerative disease in a loved one impacts children and teens.

2017 FTD Caregiver Conference Genetics of FTD Spectrum Disorders Kaylee Faulkner Naczi, MS

Kaylee Faulkner Naczi, MS, CGC of the Penn Telegenetics Program educates the audience about the genetics of FTD

2017 FTD Caregiver Conference

Dr. Roy Hamilton discusses strategies for improving Primary Progressive Aphasia

2017 FTD Caregiver Conference Anna Yung, BSN, RN

Anna Yung, BSN, RN presents practical strategies for managing symptoms at home

2017 FTD Caregiver Conference Corticobasal Syndrome & Progressive Supranuclear Palsy H. Branch Coslett, MD

Dr. H. Branch Coslett from the Penn Neuroscience Center presents on Corticobasal Syndrome & Progressive Supranuclear Palsy

2017 FTD Caregiver Conference ALS 101 Colin Quinn, MD, MSPT

Dr. Colin Quinn who treats patients at the Veteran's Association and the Penn Neuroscience Center presents on Amyotrophic Lateral Sclerosis

2017 FTD Caregiver Conference Frontotemporal Degeneration and Progressive Aphasia Murray Grossman, MD, EdD

Dr. Murray Grossman presents an overview of behavioral-variant Frontotemporal Degeneration (bvFTD) and Primary Progressive Aphasia (PPA).

2017 FTD Caregiver Conference Opening Remarks and Welcome: Murray Grossman, MD, EdD, Susan L-J Dickinson, MS, CGC, William Reiter & Kathryn Jedrziewski, PhD

Murray Grossman, MD, EdD Penn Frontotemporal Degeneration Center 

Susan L-J Dickinson, MS, CGC Association for Frontotemporal Degeneration 

William Reiter   Alzheimer’s Association, Delaware Valley Chapter

Kathryn Jedrziewski, PhD Institute on Aging, University of Pennsylvania