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Overview of Frontotemporal Lobar Degeneration
Dr. Murray Grossman provides an overview of Frontotemporal Degeneration at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
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Decision Making in Advanced Illness - Lauren Massimo, MSN, CRNP
Lauren Massimo, MSN, CRNP, of the Penn FTD Center speaks about Decision Making in Advanced Illness at the 2013 FTD Caregiver Conference on Friday, June 7, 2013.
Caregiving Challenges - Marianna Diloyan, MPH, RN
Marianna Diloyan, MPH, RN of the Penn FTD Center addresses Caregiving Challenges at the 2013 FTD Caregiver Conference onF riday, June 7, 2013.
Community Resources - Sharon Denny, MA, Claire Day, Brenda Edelman, MSS, Trisha Caruana, MSW
Sharon Denny, MA (The Association for Frontotemporal Degeneration), Claire Day (Alzheimer’s Association Delaware Valley Chapter ), Brenda Edelman, MSS (The ALS Association Greater Philadelphia Chapter ) and Trish Caruana, MSW (CurePSP) participate in a panel discussion on Community resources at the 2013 FTD Caregiver Conference…
Legal and Long Term Planning - Paul Feldman, Esquire
Paul Feldman of the law firm of Feldman & Feldman discusses Legal and Long Term Planning at the 2013 FTD Caregiver Conference.
Genetics of FTD Spectrum Disorders - Elisabeth McCarty Wood, MS, CGC
Elisabeth McCarty Wood, MS, CGC, of the Penn FTD Center, speaks about Genetics of FTD Spectrum Disorders at the 2013 FTD Caregiver Conference on Friday, June 7, 2013.
Keynote Presentation: “Adapting to a Change in Lifestyle” - Helen-Ann Comstock
Helen-Ann Comstock presents the Keynote Address at the 2013 FTD Caregiver Conference, held at the University of Pennsylvania on Friday, June 7th, 2013. Mrs. Comstock founded the Association for Frontotemporal Degeneration in 2002 and served as its board chair until 2010. She continues to serve on AFTD’s Board of Directors and…
FTD Drug Development - Kurt Brunden, PhD
Dr. Kurt R. Brunden, the Director of Drug Discovery and Research Professor in the Center for Neurodegenerative Disease Research (CNDR) at the University of Pennsylvania, addresses FTD Drug Development at the 2013 FTD Caregiver Conference.
Tau Transmissions - Virginia Lee, PhD, MBA
Tau Transmissions are presented by Dr. Virginia M.-Y. Lee at the 2013 FTD Caregiver Conference. Dr. Lee is is the Director of the Center for Neurodegenerative Disease Research and Co-director of the Marian S. Ware Alzheimer Drug Discovery Program at the University of Pennsylvania.
Corticobasal Syndrome & Progressive Supranuclear Palsy - Lama Chahine, MD
The University of Pennsylvania's Dr. Lama Chahine discusses Corticobasal Syndrome and progressive Supranuclear Palsy at the 2013 FTD Caregiver Conference on Friday, June 7, 2013.
Amyotrophic Lateral Sclerosis - Lauren Elman, MD
Dr. Lauren Elman of the University of Pennsylvania ALS Clinic presents on Amyotrophic Lateral Sclerosis at the 2013 FTD Caregiver Conference on Friday, June 7, 2013..
Frontotemporal Degeneration - Murray Grossman, MD, EdD
Dr. Murray Grossman, Director of the Penn FTD Center, provides an overview of Frontotemporal Degeneration at the 2013 FTD Caregiver Conference on Friday, June 7, 2013.
2013 Caregiver Conference Opening Remarks and Welcome
Dr. Murray Grossman welcomes attendees to the 2013 FTD Caregiver Conference. He is joined by Susan Dickinson, MS, CGC (Association of Frontotemporal Degeneration), Claire Day (Alzheimer’s Association Delaware Valley Chapter), and Kathryn Jedrziewski, PhD, Deputy Director of the Institute on Aging (IOA) at the University of Pennsylvania.
It Is What It Is - Frontotemporal Degeneration: Tragic Loss, Abiding Hope
This excellent film by the Association for Frontotemporal Degeneration introduces viewers to the impact of Frontotemporal degeneration and challenges them to help change the future for everyone affected by these diseases.
Planning for Hope
From co-producers Susan Grant, an FTD patient, and her caregiver Cindy Dilks, "Planning for Hope" captures some of the most brilliant and passionate researchers exploring early diagnoses for this rare disease.
Frontotemporal Disease or Dementia (FTD) has been misdiagnosed along with other neurodegenerative diseases that cause dementia in young people in…
Advances in Frontotemporal Degeneration: Murray Grossman, MD
Murray Grossman, director of the Penn FTLD Center, talks about the latest research on FTLD and related conditions at the 2012 FTLD Caregiver Conference.
Community Resources
Sharon Denny of the Association for Fronotemporal Degeneration provides an overview of Community Resources for those with Frontotemporal Lobar Degeneration at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
Decision Making in Advanced Illness Part II
Dr. Mary Ersek, University of Pennsylvania School of Nursing, discusses Decision Making in Advanced Illness and Frontotemporal Lobar Degeneration at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
Decision Making in Advanced Illness Part I
Marianna Diloyan, Penn FTD Center, discusses Decision Making in Advanced Illness and Frontotemporal Lobar Degeneration at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
New Treatments of Frontotemporal Lobar Spectrum Disorder
Dr. Kurt Brunden discusses New Treatment of Frontotemporal Lobar spectrum disorders at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA
Legal and Long-Term Planning
Paul Feldman, Esquire discusses Legal and Long-Term Planning in Frontotemporal Lobar Degeneration at the February 2012 FTD Caregiver Conference, University of Pennsylvania, Philadelphia, PA