From co-producers Susan Grant, an FTD patient, and her caregiver Cindy Dilks, "Planning for Hope" captures some of the most brilliant and passionate researchers exploring early diagnoses for this rare disease.
Frontotemporal Disease or Dementia (FTD) has been misdiagnosed along with other neurodegenerative diseases that cause dementia in young people in their 40s, at the peak of their careers and in the prime of their lives.
Most importantly, families have stepped forward in this poignant documentary to share their heart-wrenching stories of perpetual grieving, amidst financial struggles and caring for their loved ones.
Sharing another aspect of hope, professionals explore financial and estate planning for FTD victims and their families.
Today, there is no single known cause, treatment or cure for FTD. However, the film provides hope for the future as science is moving at a fast pace.
This trailer introduces Frontotemporal Disease (FTD), a dementia second in prevalence to Alzheimer's Disease.
You also may download a free eBook that accompanies this film, "Know the Early Signs of FTD" at http://www.slideshare.net/FTDPlanningForHope/planning-for-hope-know-the-early-signs-of-ftd-frontotemporal-disease-ebook that will aid you in recognizing the early warning signs of FTD and show you how to approach getting a diagnosis.
Early detection matters.
Know the early signs of FTD.
Dianna K.H. Wheaton, MS, PhD, CHES announces the launch of the FTD Disorders Registry
Claire Day of the Alzheimer’s Association Delaware Valley Chapter counters the late afternoon slump with an energetic presentation on community resources and the importance of self-care
The Penn FTD Center's Lauren Massimo, PhD, CRNP discusses decision making in advanced illness, focussing on interventions to promote quality of life
Paul L. Feldman is a founding partner of the law firm of Feldman and Feldman, stressed that it is never too early to talk about and plan for the future.
Anna Yung, BSN, RN presents practical strategies for managing symptoms at home
Beth Wood, MS, LCGC of the Penn Telegenetics Program educates the audience about the genetics of FTD
Mother and son Lisa and Gary Radin talk about their FTD caregiving journey
Dr. Jaime Reilly of Temple University highlighted how proper diagnoses are important, not just for drug treatments, but for targeted behavioral interventions.
Corey McMillan, PhD discusses how imaging and biomarkers can be used as noninvasive techniques to help clinicians make more precise diagnoses.
Dr. David Irwin of the Penn FTD Center discusses how improving the ability to distinguish between FTD subtypes is crucial to both clinical treatment and research
Dr. H. Branch Coslett from the Penn Neuroscience Center presents on Corticobasal Syndrome & Progressive Supranuclear Palsy
Dr. Lauren Elman from the Penn Comprehensive ALS Center presents on Amyotrophic Lateral Sclerosis
Dr. Murray Grossman presents an overview of behavioral-variant Frontotemporal Degeneration (bvFTD) and Primary Progressive Aphasia (PPA).
Murray Grossman, MD, EdD Penn Frontotemporal Degeneration Center
Susan Dickinson, MS, CGC Association for Frontotemporal Degeneration
Claire Day Alzheimer’s Association, Delaware Valley Chapter
Kathryn Jedrziewski, PhD Institute on Aging, University of Pennsylvania